Eventful Week

So the last week has been pretty eventful, I visited my Nanna for her Birthday who is probably a hundred by now, and spent the evening listening to her jokes that were hilarious. Not because they're funny but because they suck on a whole new level. I love my Grandparents. On a sad note, my beautiful rabbit died. He was 8 and a half so had a long run, but being so hot this last week I wish he could have hung on a little longer to enjoy this weather. I'll always remember my species confused rabbit, forever trying to hump the neighbours cat. In the face.


Also this week I went wine and cheese tasting with my besties. At first I was disappointed to find that none of my favourite cheeses were there such as Babybell, Dairylea cheese triangles and Cheestring - but I found the blueberry cheese very nice which made up for that. At least I think it was blueberry, the cheese was blue? It was in aid of the Darren Rhys trust. Darren was an amazing, caring, out of this world friend who tragically lost his life at 18 in a motorcycle collision on Boxing Day 2009. I remember my sick days home from school and he'd be on webcam with me lining up all his booze on a table and teaching me the names for each one through the computer. He always had time for everyone even if you just wanted some company. I constantly made fun of him for having a pink girl phone. He was a legend to say the least. His brilliant Mum Hazel now raises money for better Youth Facilities in Gwynedd. She is carrying the Olympic Torch today and is going to hike up Kilimanjaro! What and amazing lady.

Today was clinic. So drove up to Liverpool at 7. Lung function was 35% so pretty normal. All is good! For those not clued up on lung function -  It's a machine that measures the amount of air I can blow out in one second. A healthy person's is between 80% and 100%. When you're around 32% that's when you get considered for a lung transplant. But I am very lucky as I cope very well on my low numbers. Hopefully won't have to think about transplant for a few years! During my consultation with the doctor I noticed a spider on the floor, fearing that he was a ''stomp on the bug'' kind of guy, I got down on my hands and knees mid conversation to pick it up and put it out the window. I realised this was a weird thing for me to do but my Doctor just waited there for me to be done. I think they all have accepted I'm not very normal. This makes me happy.

Well I am undecided at the moment what I'm going to do with the rest of my day.. We shall see what happens! Until next time..

The Beginning

So I've decided to start a blog. I don't know how this is going to turn out.. I'm no writer, last time I ever wrote in detail about myself was in my diary at 12, which was mainly adventures of me and my first hamster. I think those adventures killed him. I have 4 others in the back yard who will probably agree with me. Anyway, I'll probably treat this like a diary, following my life, my health with Cystic Fibrosis and thoughts. So this will be something different! I hope it's not boring and people will enjoy reading the absolute crap I have to write. Here goes nothing...

So basically a bit of background. It's only the last 3 years I've become open about my CF. In school I only had a few friends and teachers who knew I had it, and a couple of best friends who were supportive. I wont go into detail, there's no point dwelling on the past. Once I was in college my health declined rapidly to a point where I couldn't pass it off as Asthma anymore. I started needing Oxygen and my daily pill intake was upped to 47 tablets per day and I would collapse taking 12 steps to the next floor. To my surprise everyone in College was so supportive when I told them, and I didn't have to hide that part of my life any more. They told me not to hide who I was as it was a part of me. I was the happiest I'd ever been in my life and still am to this day. These people changed my life and a huge weight was lifted off my shoulders.      
        Hiding my CF was like having a third leg and spending my whole life covering it up because other people didn't like it. I was stressed and unhappy. So now I have started raising awareness for a cure. For all my friends with CF to breathe easier, deeper and longer.