So today I got the definite news. I've
known this for a while, but didn't want to say anything because I was skeptical and it sounded too good to be true. The bug I contracted at
15 years old, Atypical Mycobacterium , the bug that completely
deteriorated my lung function to the 27% that remains, is gone. This is probably the reason I have started to gain weight and recently reached 7 stone (98 lbs) for the first time in my life. As from
today I stop all my treatment for it BECAUSE YOU DEAD MUDDAFUKA. Which brings me down to around 40 pills a day. That feels weird.. lol.
But there's more to it – now that I don't have this bug I am now a
candidate to be evaluated for a double lung transplant. Not that I
feel I need one yet, but now I have a decision to make. Transplant
holds many pros and cons and I think before, I was comforted by the
relief that I wouldn't have to make that decision. If worst came to
worst I couldn't have a transplant because of this bug, but now I
could. So right now instead of stressing myself out whether I should
have a transplant when the time comes I'm just going to appreciate
that I have the choice. Hope that makes sense.
Here is a photo showing how much air lungs can hold at what percentage. Being lower than the last image at 27% you can get an idea of why I sound like Darth Vader with laryngitis when trying to climb stairs.
But for the record in case anyone with
CF thinks they have me beat in the bug department think again,
losers. To join my Pseudomonas, Aspergillus and Stenotrophomonas Maltophilia I now have a new addition – Pandorea species. I like
it, it makes me sound like something out of Avatar. So if everyone could just call me ''Neytiri'' from now until forever that would be great, thanks.
I'm serious.
Not much else has happened recently. I learned to write in runic to add to my priceless large variety of useless knowledge, I registered to vote, passed my college exams and I'm pretty lucky to be alive today because my dog sat her ass on my face while I was sleeping last month and I nearly suffocated.
I really need to update this blog more often. I'll make it my 4 month late new years resolution.
I think that's all right meow. Until next time :)
No comments:
Post a Comment